AST month, a group of nephrologists
(medical spe-cialists in kidney diseases), held a one-day clinic at the
Magsaysay Memorial Medical Center in Lopez, Quezon. Their patients were a
special group of 107 males, ranging in age from 19 to 47 years, who had
undergone unilateral nephrectomies (surgical removal of one of their kidneys) 2
weeks to 4 years before. The kidneys were transplanted to victims of end-stage
renal disease (terminal kidney failure) believed to be mostly foreigners.
The vendors were from low-income groups with a mean family
income of 3,600 pesos a month. More than half of them had not finished high
school and 20 percent were unemployed. Almost all of them said that they gave up
their kidneys primarily for money (seven said that their motive was to help the
patient). They were paid about one hundred thousand pesos to give up one of
their kidneys.
The survey showed that most of the kidney vendors (71
percent) would not have sold their kidneys knowing now that their economic
status has not improved and their physical health is probably compromised. All
of them said that, if asked by others, they would not recommend their friends or
relatives undergo the operation.
This study reveals a number of the reasons why the removal of
a kidney from an otherwise healthy human being for the purpose transplanting the
organ to a patient in kidney failure who has no relation to the donor is almost
always unethical and should not be allowed legally. Exposure to surgical risk
per se and the high probability of future health impairment certainly violates
the first principle of medical ethics – "first, do no harm".
Contemporary ethicists would allow possible harm to a human
being if there is a commensurate benefit to be derived from the procedure. In
the case of the Quezon kidney vendors, the only benefit was the small sum of
money which in fact did not alleviate their financial and social conditions.
Although the removal may have benefited the recipients, without any kinship
links, such benefits were far removed from the vendors.
Then there is the issue of free and informed consent. The
study showed that the Quezon vendors did not realize the risk they took when
they underwent the surgeries. Additionally, the offer of a hundred thousand
pesos to a person whose family income is only three thousand a month is
tantamount to coercion. On this score, the procedures performed on the Quezon
vendors are also ethically flawed.
But on the issue of allowing the transplantation of kidneys
from living non-related donors (LNRD), individual ethical considerations pale in
comparison to the grave public health and social implications of a government
policy that not only allows but actually encourages this procedure to be carried
out in public and private hospitals. This is in fact what the Department of
Health’s A.O. 2008 s. 004 does in effect.
With its provision that allows "non-directed" donors to give
up their kidneys, the Order opens a loophole that kidney brokers can exploit to
entice surgeons to harvest kidneys from LNRD individuals. This will create a
cohort of members of society whose health is at greater risk than others. If and
when, universal health care becomes a reality, this pool of at-risk individuals
will potentially be a burden to whatever health system is in place at that time.
But even if the present system is maintained, the social welfare community will
have to bear the burden of taking care of them when they do get ill. This is a
fatal policy flaw since policies, especially in health, should be forward
looking and anticipate the future.
As pointed out in last week in this space, the worst
implication of the recent issuance on LNRD is that on equity and justice within
the health system. As pointed out during last week’s press conference called by
the Philippine Society of Nephrologists, any policy is immoral that allows
wealthy Filipinos and foreigners access to the kidneys of economically deprived
Filipinos who themselves do not have access to any of the interventions needed
for diseases such as end stage renal disease.
There is an interesting sidelight in the simmering
controversy over LNRD. This is the difference of opinion between kidney
transplant surgeons on one hand and nephrologists on the other. Obviously, there
is a minority on the fringe of either side of the controversy whose motivation
is financial (i.e., when a patient in end stage renal disease is transplanted,
the surgeon gains (from his substantial fee) at the expense of the nephrologists
(who loses a patient who would otherwise be on dialysis). Nevertheless, the vast
majority of the doctors involved are ethically upright and act on their
perception of what is best for the patient.
For this majority, many of the issues are technical –
covering questions such as when is the optimal to do a transplant, or whether an
available kidney is truly suitable for the matched recipient. In order to avoid
distraction from the major considerations of equity, justice and appropriateness
of interventions, it behooves this majority group of concerned doctors to
resolve these differences in a collegial manner and to agree on set guidelines
and protocols for transplantation itself.
Only when this happens, can the whole health community led by DOH mobilize a
major effective effort to promote living related donor and cadaver donations on
a scale massive enough to meet the needs of all Filipino patients in need.
Should the effort result a surplus, then and only then can the country open its
kidney transplant program to foreigners.